The Evaluation and Management of Neuromuscular Diseases
Including Duchenne Muscular Dystrophy, Spinal Muscular Atrophy, ALS/MND

Dates & Location

The course will be held May 18th, 2002, at the Parsippany Embassy Suites Hotel, Parsippany, New Jersey. [Map]

The recommended hotel is the conference hotel: The Parsippany Embassy Suites--$109/Suite. Identify KMRREC Neuromuscular Disease Course.
Hotel: 1-973-334-1440
909 Parsippany Blvd.
Parsippany, NJ 07054

First Annual Course Sponsors

• Department of Education, Kessler Medical Rehabilitation Research and Education Corp.
• The Jerry Lewis Muscular Dystrophy Association and the MDA Clinic of the University of Medicine and Dentistry of New Jersey (UMDNJ) (Physical Medicine & Rehab Dept.)
• The New Jersey Medical School (NJMS), Newark, NJ
• The Center for Noninvasive Mechanical Ventilation Alternatives and Pulmonary Rehabilitation of the UMDNJ/NJMS University Hospital, Newark, NJ
• J. H. Emerson Company, Cambridge, MA
• Respironics International Inc., Murrysville, PA
• Millennium Respiratory Services, Whippany, N.J.
• Advanced Respiratory, St. Paul, MN
• Families of Spinal Muscular Atrophy

Overview

• A unique course for patients and health care professionals presenting the latest in research, surgical, orthopedic, respiratory, cardiac, and therapeutic advances in managing neuromuscular disease.
• Following lectures there will be hands on workshops and consultations with medical specialists for respiratory, cardiac, nutrition, orthopedic, and other surgical concerns.
• Participants will learn how to optimize quality of life and avoid risks to health from neuromuscular disease.
• Participation will be limited to 100.

Registration Information

Registration will be limited to 100 participants.

Since seating will be limited, we encourage prospective participants to register early.

All participants: $70

To register, complete and fax or mail the Registration Form.

Objectives

Participants will learn to...

1. Apply interventions to diminish the muscle tightness that along with weakness results in loss of the ability to walk, function, and maintain respiratory health.
2. Recognize the importance of avoiding back deformity and how to prevent it.
3. Prevent potentially life-threatening cardiorespiratory complications of neuromuscular disease without resort to invasive surgical measures.
4. Discuss medical and nutritional interventions and ongoing research.

Center for Noninvasive Ventilation Alternatives Faculty

John R. Bach, M.D., Medical Director, Professor of Physical Medicine and Rehabilitation, Vice Chairman, Department of Physical Medicine and Rehabilitation, Professor of Neurosciences, Co-Director, Jerry Lewis Muscular Dystrophy Association Clinic

Scott Baird, M.D., Assistant Professor of Pediatrics, Director of Pediatric Intensive Care Services

Soly Baredes, M.D., Chief, Division of Otoparyngology-Head and Neck Surgery, Associate Professor of Surgery

Colin Bethel, M.D., Assistant Professor of Surgery, Assistant Professor of Pediatrics, Chief of Pediatric Surgery

Nishith Bhattacharya, M.D., Assistant Professor of Surgery, Pediatric Surgery

Melissa Davidson, M.D., Associate Professor of Anesthesiology, Acting Chairman, Department of Anesthesiology

Mary Ellen Downey, R.R.T., Millennium Respiratory Services

Daniel Florio, Esq.

Jill Gaydos, M.S., Department of Nutrition, University Hospital, UMDNJ/NJMS, Newark, N.J.

Jeff Gray, NIV User

Ann Gulyas, M.A., S.L.P., Division of Speech and Language Therapy of the Department of Physical Medicine and Rehabilitation, University Hospital, Newark, N.J.

John Katz, M.D., Associate Professor of Anesthesiology

Jennifer Michaels M.D., Assistant Professor of Neurosciences, Department of Neurosciences, Director, Jerry Lewis Muscular Dystrophy Association Clinic

Jose Navado, M.D., Assistant Professor of Pediatrics

Jeff Ricci, R.R.T.

Sanjeev Sabharwal, M.D., Chief, Division of Pediatric Orthopedics, Assistant Professor of Orthopedics, Assistant Professor of Pediatrics, Department of Pediatrics, Assistant Professor of Orthopedics, Department of Orthopedics

Lou Saporito, B.S., R.R.T., Technical Director

Kenneth Swan, M.D., Professor of General and Trauma Surgery

Brian Weaver, B.S., R.R.T., R.P.F.T., Technical Advisor for Pediatrics, University Hospital, UMDNJ/NJMS, Newark, N.J

This center has published over 250 book chapters and medical articles in major medical journals and 8 books on the management of neuromuscular diseases. Its physicians have pioneered the surgical and cardiorespiratory management of neuromuscular diseases, robotic interventions, and introduced orthopedic and medical treatments that were previously only available in Europe and Japan. For more information see DoctorBach.com.

Invited Faculty Includes

Ms. June Bruno, Ph.D., CCC-SLP, Director of Education Technology, Childrens Specialized Hospital, Mountainside, NJ

Yuka Ishikawa, M.D., Director, Department of Pediatrics, National Yakumo Hospital, Assistant Professor, Department of Rehabilitation Medicine, Sapporo Medical University, Hokkaido, Japan

Julie E. Janson, M.S., OTR, ATP, Senior Therapist, Children's Specialized Hospital, Mountainside, N.J.

Smadar Kort, M.D., Assistant Professor of Medicine, New York University, Director of Echocardiography Laboratory, North Shore University Hospital, NY

Jennifer Majors, P.T., Kansas City, MO

Marcello Villanova, M.D. Ph.D, Bologna, Italy

Evaluation And Management of Neuromuscular Diseases
May 18, 2002

Note: Schedule revised May 7, 2002. Subject to change w/o notice.

8:30-9:15 Respiratory Management - J Bach

9:15-9:45 Intensive Care - S. Baird

9:45-10:00 Break

10:00-10:45 Orthopedic Management - S. Sabharwal

10:45-11:30 Swallowing - A. Gulyas, S. Baredes

11:30-12:30 Creatine and other research - M. Villanova

12:30-1:30 Lunch and Panel Discussion

1:30-2:00 Cardiac Management - S. Kort

2:00-2:30 Reflux Assessment and Management - N. Bhattacharya

2:30-3:00 How to go to college - D. Florio

3:00-3:45 Physical therapy - J. Majors

Workshops

4:00 - 5:00 Respiratory - L. Saporito, B. Weaver

4:00 - 5:00 Physical and Occupational Therapy - J. Janson

5:00 - 6:00 Augmentative Communication and Computer Access - J. Bruno, A. Gulyas

5:00 - 6:00 Nutrition - M. Villanova, G. Gaydos, J. Bach

Consultations

• Respiratory - J. Bach, L. Saporito, B. Weaver
• Orthopedics - S. Sabharwal
• Cardiac - Y. Ishikawa, S. Kort
• Bowel motility (Duchenne) - J. Gray

Registration Information

Registration will be limited to 100 participants.

Since seating will be limited, we encourage prospective participants to register early.

To register, complete and fax or mail the Registration Form.

More Information

For more information please call 973-243-6813.

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